RUN FOR RETT 2020 - POSTPONED
The world is grappling with an issue of enormous scale and human impact, and my heart goes out to all who have been affected by the outbreak of novel coronavirus (COVID - 19). Our responsibility is to the health and well being of our participants and volunteers for the Run For Rett.
It is with a heavy heart that Rettsyndrome.org, the Forest Preserve District of Cook County and myself, have made the difficult decision to postpone the Run For Rett to Saturday, September 19, 2020. This decision was thoughtfully made with extreme caution and concern for our entire Rett syndrome community and others.
All registrations will be transferred to the new date.
Thank you for your understanding, cooperation and support. Do not hesitate to reach out to me at 847-567-0964 or email me at Diross62@aol.com if you have any questions.
See you in September!!!
Run For Rett Coordinator
Saturday, September 19, 2020
Busse Woods, Grove 28
Elk Grove Village, IL
International Rett Syndrome Foundation purpose is to support and encourage medical research to determine the cause, treatment and cure for Rett syndrome, and to provide informational and emotional support to families of those with Rett Syndrome.
About Rett Syndrome
Rett syndrome is a rare non-inherited genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.
For 20 years, we have relentlessly pursued advanced and comprehensive research to transform the lives of all those affected by Rett syndrome. We are focused on delivering treatments and ultimately a cure for Rett syndrome while empowering families with the resources, connections and encouragement they need to thrive.
- September 19 7:00 AM CDT - Race Day Registration and Packet Pick-Up
- September 19 8:30 AM CDT - 5K Run/Walk Start
- September 19 9:00 AM CDT - 1 Mile Fun Run/Walk Start