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My team
My Story…
Thank you for supporting Chuck Virtual run. I am on my Daughter Shelby's Newkirk team. She developed Dystonia 10 years ago and it has changed her life. She has uncontrollable spasms in many muscles and we can't do anything to stop it. In spite of all that, she has done so many incredible things: World class swimmer who holds a world record, and multiple Canadian and Americas records; University student studying education to become elementary teacher; volunteer coach for para swimmers and inspires the young swimmers in her club. She has inspired me to joining her team and do the 5 k virtual run to raise money for research to find cures for this disease. We have been going out in wheel chairs and started doing our 5 k. I had no idea of how hard it is to wheel on uneven ground. Curbs and sidewalks are dangerous. I am looking forward to spending time with Shelby and doing this challenge to support this very important research. Please join us.
Description
Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. Primary dystonia affects approximately 50,000 Canadians. Watch this short video to learn more.
The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education and to support the needs and well being of affected individuals and families. For more information, click here
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| May 12 | Namalika Karunaratne | Undisclosed amount |
| May 09 | Diana Chipps | $50.00 |
