Cure the Boys Run for ALD
Run for ALD, Cure the Boys is a 5K/1 mile run/walk homegrown event, the only one of its kind in the St. Louis area that raises awareness and funds for adrenoleukodystrophy (ALD). ALD is a very progressive disease that affects about 1 in 17,000 boys, many of whom suffer severe neurological symptoms that often result in death if undiagnosed and not treated very early. Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant (the only current treatment) to halt the progression of his cerebral ALD at the University of Minnesota Children's Hospital (a world leader in transplants and ALD research) in 2016. ALD is considered a rare disease so there are very limited grant funds; in order to initiate and continue life-saving research, the University of Minnesota Leukodystrophy Center depends on charitable donations. All funds raised from Run for ALD will directly benefit the University of Minnesota's ALD Research Fund to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease. Please join us for our 5K run/one mile walk in Creve Coeur Park….you can also form a team or just make a donation to our nonprofit Knockout ALD for this very special cause to help Cure the Boys!
**We are monitoring the pandemic closely, and we plan to adhere to all policies put in place by St. Louis County this November. If we're unable to host an in-person event, we will transition to a virtual walk/run.
|1||Betty & Leo Purschke||$2,000.00|
Team Purschke, Nicholas's Knockout Crew
Mac Attacks ALDRaised:
Can’t Stop BrockRaised: