My Story…
For the past few years, my dear friends Pat and Lin have been running the Falmouth Road Race to raise funds for Cure SMA, and for 2021...I've decided to join them!
Spinal Muscular Atrophy (SMA) is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking. It is the number one genetic cause of death for infants. While still considered a "rare disease," about 1 in 50 people are genetic carriers for SMA, and those carriers have a 1 in 4 chance for having a child with SMA. As carriers, Pat and Lin had a lot of concerns and questions about starting a family, but fortunately, their girl Francie was born a few years ago and she does not have any of the SMA carrier genes. I just saw her yesterday, she's great!
As you can imagine, there are many families in similar situations looking for hope and resources in the face of such a terrifying obstacle. Cure SMA provides vital support for families living with SMA, improving their quality of life. Additionally, they are leading the way to fund research and find a future cure for spinal muscular atrophy. Beginning with the approval of Spinraza in 2016, we've entered a more hopeful chapter. Advancing genetic therapies are slowing the impact of SMA and saving lives.
As a result, your donation truly makes a positive impact on so many families. Since partnering with the Falmouth Road Race, Team Cure SMA has raised over $200K. Let's make sure that number keeps growing. Thank you for your support.
Donate to help Michael raise money for The 2021 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 14 | Michael Melia | $28.10 |
Aug 13 | Kayla Dupras | $28.10 |
Aug 10 | Glloyd | $28.10 |
Aug 10 | Myke Doyle | $55.35 |
Aug 09 | Alecia Orsini | Undisclosed amount |
Jul 20 | Butts Butts and more Butts Corp. | $55.35 |
Jul 20 | Jim and Meg Anderson | $109.85 |
Jul 13 | Jeff | $55.35 |
Jul 12 | Craig Chu | $100.00 |
Jul 10 | Anonymous | Undisclosed amount |