Our Story
I'm so proud to be a part of the Live4Evan team for the fourth year in a row! L4E is an amazing organization and I'm honored each year to fundraise and run for the families and children we raise money for. This year I get to run on behalf of this adorable Heart Warrior, Addy! ❤️
Adalynn "Addy" was born in Rochester, NY on May 7, 2019 with Tetralogy of Fallot, Pulmonary Atresia, MAPCAs, and tracheobronchomalacia. She was hospitalized for the first 6 months of life, 4 of which were at BCH, where she had 2 OHS and an airway surgery. At 10 months old, Addy went back to BCH for her 3rd OHS, which is the first time we stayed at a L4E apartment. About 6 months later, we were welcomed back to L4E while Addy underwent a cath procedure. Because of the wonderful care at BCH, Addy is now 2 years old, thriving, living with mom, dad, big brother Benny, and her three kitties. Despite a grim prognosis early in life, she continues to surprise everyone around her with her sassiness, strength, and tenacity for life. Her next anticipated trip to BCH will be next year for another cath and these will continue minimally every year or two. Doctors expect that she will need another OHS surgery in adolescence or young adulthood.
Thanks to the L4E team for all that you do and thank you to those who can help contribute to such a wonderful cause. I appreciate every donation! 🙏
Donate to help Rob raise money for The 2021 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 05 | Jess Holmes | $28.10 |
Aug 05 | Matt Hickey | Undisclosed amount |
Aug 03 | Amanda Twohig | $28.10 |
Aug 03 | Kate Walsh | $28.10 |
Aug 03 | Lucina Rowe | $28.10 |
Aug 03 | Kelsey Galayda | Undisclosed amount |
Aug 03 | Corrine Lin | Undisclosed amount |
Aug 03 | Melissa Matusky | Undisclosed amount |
Aug 03 | Kevin Flanagan | Undisclosed amount |
Aug 01 | Anonymous Match | $220.00 |