RUN FOR RETT 2021
Saturday, May 8
Sunday, May 16
Any time and any place
Our responsibility is to the health and well being of our participants and volunteers for the Run For Rett. The decision to keep this as a virtual event was thoughtfully made with extreme concern for our entire Rett syndrome community and our dedicated participants. Thank you for your understanding, cooperation and support. If you have any questions do not hesitate to contact me at 847-567-0964 or email me at Diross62@aol.com
Run For Rett Coordinator
International Rett Syndrome Foundation purpose is to support and encourage medical research to determine the cause, treatment and cure for Rett syndrome, and to provide informational and emotional support to families of those with Rett Syndrome.
About Rett Syndrome
Rett syndrome is a rare non-inherited genetic neurological disorder that affects 1 in 10,000 females (and even more rarely in males) and begins to display itself in missed milestones or regression at 6-18 months. Rett syndrome leads to severe impairments, affecting nearly every aspect of life: ability to speak, walk, eat and breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake. Cognitive assessment in children with Rett syndrome is complicated, but we know that they understand far more than they can communicate to us, evidenced by their bright and attentive eyes, and their ability to express a wide spectrum of moods and emotions.
For 20 years, we have relentlessly pursued advanced and comprehensive research to transform the lives of all those affected by Rett syndrome. We are focused on delivering treatments and ultimately a cure for Rett syndrome while empowering families with the resources, connections and encouragement they need to thrive.
- May 8 12:00 AM CDT - The Run For Rett 5K and 1 Mile event begins
- May 16 11:59 PM CDT - The Run For Rett 5K and 1 Mile event ends