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Help Nedeen raise money

For participating in Freedom to Move: Run, Walk and Wheel for Dystonia 2021

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My Story…

I'm walking for Dystonia throughout the month of June because I was diagnosed with Cervical Dystonia in 2014 and it drastically changed my life. I deal with severe chronic pain and abnormal movements of my neck every day. There are limited treatment options for the disorder and it is extremely debilitating. 

I am hopeful that raising awareness and funds for Dystonia will lead to more research and in turn more treatment options.

My personal goal is to walk 150-200km throughout the month of June.


Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. Primary dystonia affects approximately 50,000 Canadians. Watch this short video to learn more. 

The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education and to support the needs and well being of affected individuals and families. For more information, click here

Recent donors

Donation date Donor name Donation amount
Jul 16 Robert May $25.00
Jun 29 Anonymous $100.00
Jun 29 Emily Logan $50.00
Jun 29 Mary Martin Way to go Nedeen! $50.00
Jun 29 FRANK BORRELLI $50.00
Jun 29 Will M Truly inspiring! $50.00
Jun 24 Krys & JY, Grizzly Paw B&B & Gardens $250.00
Jun 20 Mel Faulkenham $25.00
Jun 16 Luc & Louise (QC) $200.00
Jun 14 The Babbings So proud to call you my friend. Your journey to wellness is inspiring 💙 $25.00