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Help Nedeen raise money

For participating in Freedom to Move: Run, Walk and Wheel for Dystonia 2021

My Story…

I'm walking for Dystonia throughout the month of June because I was diagnosed with Cervical Dystonia in 2014 and it drastically changed my life. I deal with severe chronic pain and abnormal movements of my neck every day. There are limited treatment options for the disorder and it is extremely debilitating. 

I am hopeful that raising awareness and funds for Dystonia will lead to more research and in turn more treatment options.

My personal goal is to walk 150-200km throughout the month of June.

Description

Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. Primary dystonia affects approximately 50,000 Canadians. Watch this short video to learn more. 

The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education and to support the needs and well being of affected individuals and families. For more information, click here

Recent donors

Donation date Donor name Donation amount
Jun 14 Edmund I admire your healthy attitude. Good luck with all your projects. $50.00
Jun 12 Rachel Gonzaga Nedeen your strength, determination and perseverance is incredible. $50.00
Jun 09 Cheryl Prinsenberg You are one courageous woman, Nedeen. $25.00
Jun 07 Rob and Lori Oliver We’re very proud of how strong and resilient you are Nedeen! You rock girl!!💖 $50.00
May 18 Tom Seaman Keep up the great work Nedeen!! You are inspiring so many with your many achievements. We all thank you! $25.00
May 07 Joan Mumford In honor of Nedeen's effort to successfully live with her Dystonia. $25.00
Apr 30 The May’s $50.00
Apr 23 Trevor Lind $25.00
Apr 21 Anonymous Undisclosed amount