Help Judith raise money

Hi I am Judy I have lived with Migraine since I was 7 years old. Migraine is a complex neurological condition which affects many people in different ways please consider a donation which goes to the Alliance of Headache Disorders Advocacy Org. They help with scholarships to send Advocates living with Migraine to DC. 

My Story 

My life changed forever  back in 1987 when I experienced symptoms that I was later told was Migraine.

I was also told that when I received glasses for my poor eye sight that my Migraine and symptoms  would go away. Well I have news for the doctor that told me that. Guess what — that never happened.

Over the years I have suffered many symptoms of which have included
Spinning head inside
Body aches and pains
Slurred speech
Fatigue
Hot and cold flushes
Blurred vision
Throbbing stabbing pain
Photophobia
Phonophobia
Parasthesia
Vertigo
Brain Fog
Facial swelling
Allodynia
Exhaustion
Osmophobia
Lethargy
Vomiting
Confusion
Pulsating pain
Temple pain
Stiff neck
Sleepiness
Aura
Increased Bp
Ear pain
Jaw pain
Balance issues
Increased urination
Constant yawning
Muscle weakness
Aphasia
Abdominal pain
Loss of appetite
Hyperosmia
Dizziness
Moodiness
Paleness
Fever.
I have also had days with family or friends lost due to Migraine Attacks. I have had days lost while learning at an educational institution and having to leave due to nasty symptoms. I have had many hospital visits and even had a doctor in my younger days who would visit me where I lived because I was too ill to be moved or even get to the hospital. I could never thank him enough (sadly Dr Nelson passed away a few years ago I always like to mention anyone who has a special impact on me during my life).

Migraine was the first condition that I lived with and I know it’s been a long hard road and there surely is a cure somewhere on the horizon and I can only hold on to hope.

Talking to me causes me pain and discomfort as does any sound. #Thisisphonophobia

Make sure No light is near me as it causes intensity of the migraine & symptoms to worsen throughout my entire body .
#ThisIsPhotophobia

Please ensure no strong smells reach me as I have sensitivities to smell and it intensifys the nausea .
#ThisIsOmophobia

Please don’t bring me any food I can’t stomach it I will come and eat when I feel I can. I know people mean well however even the best intentions  can intensify the situation.

you must never try to touch me The Migraine attack causes Allodynia meaning sensitivity to touch and anything that touches me hurts me.

Please leave me alone in the dark and do not disturb as that seriously is the best you can do for me during an attack trust me I will love you for it.

Please don’t deny me a fan as I like it on me for the hot flushes if I get cold at all it’s usually not for very long.

If someone truly cared they would allow me to have a bucket so I don’t have to get up and find my way to a toilet this is a real struggle for me and it really Zapps away my energy.

I feel very faint so I urge people not to
call out to me I can’t hurry out to them and it’s best at this stage I stay where I usually am and not agitate the symptoms.

‪Migraine Poem‬
It invades and initiates take over.
It brings it's friends nausea & vomit to the table
Migraine invites another friend blurred vision.
It says it has a loss of appetite and there’s to be no eating for you ladies,gentleman and children.
Migraine says You are not being social because  sound is denied entry to your ears.
Migraine demands keep you in the dark  and no light is to hit you if it does ah oh the cycle begins again.
It decides it will explode in the head and share its friend  intense pain with you . It says sharing is caring but no Migraineur says it cares for a migraine share.
It makes the heart race really fast
and turns up the temperature aswell
it may even bring the cold and a place that feels like hell.
It brings along the body sweats,demands medication too
It brings many debilitating symptoms what on earth will you do
It gets it's rhythm pushing bringing pulsating pain
does it ever stop? the process goes over and over again
Migraine is  a neurologic disease there is no cure and again we get dizzy our head always wanting to spin
One day there will be a cure and the researchers and patients will win.
Migraine fights Allodynia where everything hurts to the touch it’s time to make it stop as  it all gets too much.
Migraine attacks all over the body affecting from head to toe I won’t be sorry Migraine when it’s time for you to go.
Migraine demands Eye mask total darkness we have no common ground to be honest I just can’t wait for a cure to be found.

An Estimated 1 billion people worldwide live with Migraine

It can be hard at times but I truly believe together we can all make a difference and I know i am not alone thanks to the  wonderful Migraine community.

I Advocate for Migraine and also the other conditions  I live with and they are
RA,
Fibromyalgia,
PMR
Rosacea
Hypertension,
Eczema
Scalp Psoriasis,
Scoliosis,
TMJ Disorder,
General Anxiety Disorder,
Social Anxiety Disorder,
Agoraphobia,
Panic Disorder
GastroEsophegal Reflux Disease (GERD) and
Mild Spinal Stenosis

I Advocate for Chronic Illness,Migraine and Mental Health. I am a Published Writer in Real Life: Diaries-Living With Rheumatic Disease, Contributor in #IPainLivingMagazine,ARMS member

#CureArthritis Crew Member for the Arthritis National Research Foundation,AIArthritis Rep,International Pain Foundation(#IPain) Patient Partner,@Clara_Health Breakthrough Crew Member, #Dazzle4Rare Advocate,Wego Health Nominee in 2017 for best in show Facebook and Twitter and I am a Savvy Patient and member of the Savvy Cooperative  online.

I Advocate in support of all who live with any illness. I make my own graphics as well, I volunteering online to help create global awareness.
#PatientsHavePower

 #ARMS