OUR FINISH LINE SAYS ALS DONE!
Hello friends and family! If you are reading this, you know me. And if you know me, you know my wonderful mom. I could fill this entire page with all of the things about my mom that make her the most loving, generous, wonderful mum, Grannie, wife, teacher, coworker, friend, sister, auntie, hostess, cook, baker, bartender...and the list could go on... My mom was diagnosed with ALS in the summer of 2021. We have spent the last year taking in this devastating news and savoring every single day.
ALS is a tough one. There is no cure and there is minimal treatment. We feel immensely blessed to have access to the best possible care there is, however the lack of options for this degenerative disease are frustrating. Most days I feel helpless in this "battle". I try to be her voice and would be her legs and hands and eat and drink for her if I could. Continued research and support is what we can do to help not only our family, but all those who may face this diagnosis in the future.
I am running my first Falmouth Road Race to support the ALS One fund in hopes that continued research provides hope for those with ALS and their families. I can not properly express the gratitude we feel for those that have supported us over the past year as we have faced this diagnosis and the challenges this disease brings. Thank you from the very bottom of our hearts.
While I do believe an ALS diagnosis is one of the must unlucky draws in the deck, I will forever consider myself to be the luckiest in the world that my mum is my mum.
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Thank you for visiting my fundraising page!
I'm so proud to be a member of TEAM ALS ONE in this year's Falmouth Road Race - the 50th running of this prestigious event, taking place on August 21, 2022!
Your support means the world to me and will help to advance critical research at MGH, UMass Medical School, and ALS TDI, while providing essential care resources and equipment to individuals living with ALS via Compassionate Care ALS - all incredible partners that make up ALS ONE.
Your donation is fully tax-deductible, as ALS ONE is a 501c3 non-profit organization (EIN #47-4984263).
To learn more about ALS ONE, visit their website at: https://alsone.org/
A big THANK YOU to all who have donated so far!
Donation date | Donor name | Donation amount |
---|---|---|
Aug 28 | Maria Baffo | $109.85 |
Aug 28 | Amy Primak | $109.85 |
Aug 25 | Beth-Ann Woods Price | $109.85 |
Aug 24 | Hypothecary Ales Cryotherapy Fundraiser | $1,114.30 |
Aug 24 | The Ingram Family | $545.85 |
Aug 22 | Tedesco family | $55.35 |
Aug 22 | Stacey and Joe Albuquerque | $545.85 |
Aug 22 | $55.35 | $55.35 |
Aug 21 | Tammy & Dave Wheeler | $55.35 |
Aug 20 | Gary and Janet | $55.35 |