Help Liz raise money

After cheering on my husband Andrew in his first Falmouth Road Race with Team Eye & Ear last year, I'm excited and proud to be joining in on the fun repping #teamear as a patient and running together in support of the Ocular Genomics Institute. 

Sharing Andrew's story in his own words below, thank you for helping us accelerate this work! 

Over 20 years ago I was diagnosed at Mass Eye and Ear with Stargardt Disease, a rare inherited macular dystrophy that leads to the loss of central vision. There are roughly 30,000 of us in the US. My vision rapidly changed from age 12-22, at which point I was declared legally blind. Since that point, my vision has mostly stabilized. Unfortunately, there are no current treatments, and an accurate prognosis is still a challenge with there being many variants of the disease. 

The Ocular Genomics Institute is working to better understand the underlying genetics of diseases like Stargardts. To date, the team of clinical scientists and researchers have pioneered some of the first gene therapy treatments in the eye, and they continuously build upon the understanding of the many forms of complex genetic eye disease, which will continue to lead to new breakthroughs.