Official registration is OPEN through March 31!
Hike, walk, or run 5k anywhere, at any time to support The Cure Tay-Sachs Foundation!
The Cure Tay-Sachs Foundation is dedicated to funding the ongoing research needed to find treatments and a cure for Tay-Sachs disease. Since starting Take A Hike Tay-Sachs as a virtual 5k in 2019, the event has raised over $45,000! Putting on this fundraiser is a labor of love in memory of Grayson Rainier Kemp, who passed away from Infantile Tay-Sachs Disease at the age of five.
Registration Details: Official registration runs March 1, 2022 - March 31, 2022. For $35 your race packet includes the 2022 long-sleeved Take A Hike Tay-Sachs t-shirt, race bib, and more, + the knowledge that you’re helping us get one step closer to a cure!
Race store: Check out our race "store" (see right side bar)! For your additional donation (the "price"), we'll thank you with the corresponding item. By providing this additional support of the fundraiser, you spread more awareness each time you use your thank you swag! We have t-shirt options, water bottle, flashlight, and more! NOTE: Swag from the store page is sent separately from your race packet and will come after you've received your race packet.
About Tay-Sachs: Tay-Sachs disease is a rare neuro-degenerative disorder in which deficiency of an enzyme (HexA) results in excessive accumulation of certain fats in the brain and nerve cells. This leads to progressive dysfunction of the central nervous system. A baby with classical Infantile Tay-Sachs appears normal at birth and typically continues to develop normally for the first six months of life but then development slows. As the disease progresses, affected children will have gradual loss of vision and hearing, increasing muscle stiffness/restricted movements and seizures, eventual paralysis, and deterioration of cognitive processes. It is fatal during early childhood. YOU can help find a cure.
Social media: Please post photos on social media with #takeahiketaysachs and tag us! You can find Take A Hike Tay-Sachs on Facebook, Instagram, and Twitter! The more you share, the more you're helping raise awareness! Awareness leads to funding, which leads to research, which leads to a cure!
For any questions regarding Take A Hike Tay-Sachs Virtual 5k, please email us at takeahiketaysachs@gmail.com.
Registration fees
2022 General Registration Closed
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- Online registration closed
2022 Taysha Employee Registration Closed
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- Online registration closed
Local Hikes, Walks, and Runs
If you're planning a group hike/walk/run, whether a private group or open to anyone, email us at takeahiketaysachs@gmail.com and we'll send you some fun swag to share! As always, please follow your local mandates and CDC guidelines. Those who suffer from Tay-Sachs are high risk and we want to do everything we can to protect them!
A special thank you to our Summit Club Sponsors!
Top donors
No. | Name | Amount |
---|---|---|
1 | RA Session II, CEO - Taysha Gene Therapies | $533.35 |
2 | Anonymous | $267.10 |
3 | Anonymous | $267.10 |
Top fundraisers
1 | View fundraiser page for T. J, |
T. J, SorensenRaised: $243.88 |
View page for T. J, |
2 | View fundraiser page for Felicia |
Felicia KempRaised: $155.35 |
View page for Felicia |
3 | View fundraiser page for Barbara |
Barbara ONeillRaised: $108.20 |
View page for Barbara |
Contact information
- Event contact
- Felicia Kemp, Event Organizer
- Website
- Visit website
Sponsors
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SUMMIT CLUB
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TRAILBLAZER CLUB
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THRU-HIKER CLUB
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TRAIL MARKER CLUB