My Story…
My Story
September 24 2019. I suddenly got a bad headache, nausea, neck pain and dizziness… I didn’t think anything of it… I went home and went to bed. The next morning Sept 25 2019 I woke up with the worse pain in my head, neck, and back I have ever experienced in my life. My head was very heavy, it was hard to keep it up, There was also a lot of pressure it in as well. I was vomiting Also, my left leg had pins and needles at the time. I end up going to the hospital They do a CT of the brain, an EKG & a lumbar puncture to rule out meningitis. Everything comes back negative. I get admitted for two days for observation and get sent home with a neurologist follow up.
October 1st, 2019. I end up going back to the emergency room. The same pain I had progressive had come back worse each day and 10/1 it came back 10x worse. I was unable to put pressure on my left leg and ended up going back to the hospital with the same symptoms but more severe. I get readmitted for two days this time. They do a whole bunch more tests, however, everything came back unremarkable
I had the following tests done and all were unremarkable.
MRI Brain MRI C Spine CT Venogram Brain CT CTA Head & Brain CT Brain MRI T Spine Blood Patches CT Myelogram MRI Myelogram
Since then, I have tried almost every medicine possible... trying to get medicines approved though the insurance and dealing with bad side effects with little relief. I have also tried botox and nerve blocks. I was at a lost.. There wasn't much more for me to try.
I was starting to lose hope until I got a referral from my neurologist to Jefferson Health to the Jefferson Headache Center for a consultation for Inpatient Ketamine treatments. They have been successful in moderate pain relief for about five to six months then I have to go for another inpatient stay I am forever grateful for this relief I have received from Jefferson.
Please consider supporting me in my two mile walk as I raise funds for Jefferson Headache Center.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Mar 09 | Erin Roslund | $27.48 |
Mar 03 | Amanda T | $27.48 |
Mar 03 | James Kane | $107.35 |
Mar 03 | Doug Kane | $107.35 |
Mar 03 | Stephanie Cecchini | $54.10 |
Mar 03 | Doug Kane (Facebook Match) | $100.00 |
Mar 01 | Kathy Grabowski (Facebook) | $20.00 |
Mar 01 | Claudia Badia (Facebook) | $20.00 |
Mar 01 | Elise Mathusa Flynn (Facebook) | $60.00 |