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The Progeria Research Foundation

The Progeria Research Foundation

Raised: $31,522.27

Visit organization's website General registration opens May 1 Leaderboards

Contact

Name
The Progeria Research Foundation
Phone
9785352594
Email
info@progeriaresearch.org

Raise money for The Progeria Research Foundation

Progeria is a rare, fatal, “rapid-aging” disease. Without the discovery of new treatments, all children with Progeria will die of heart disease at an average age of just 14.5 years. The Progeria Research Foundation (PRF) was founded in 1999 in response to the complete lack of progress being made to help children with Progeria. Our mission: to discover treatments and the cure for Progeria and its aging-related disorders, including heart disease. Today, PRF continues to be the only organization in the world solely dedicated to this mission.

The Progeria Research Foundation is thrilled to once again be part of the Falmouth Road Race Numbers for Nonprofits program!


The 51st running will take place on Sunday, August 20, 2023.

Thanks to our dedicated runners, PRF’s Falmouth Road Race team has raised over $167,000 gross since 2015, bringing us closer to additional treatments and the cure for Progeria.
 
 Let’s make this year the best yet - support TEAM PRF today!
 
 If you are interested in joining our team, contact Jennifer at jbrickley@progeriaresearch.org for details.

The Progeria Research Foundation's Mission:
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

What is Progeria?
Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Without lonafarnib treatment, all children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14.5 years.

Together, we WILL find the cure!

Teams

Click on a team below to make a donation.

Recent donors

Recent donors
Date Name Amount
Jul 27 Joe and Sharon Hehn We are hoping you have a great day in your run to support these children. Our best, Joe and Sharon $55.35
Jul 27 Memere $109.85
Jul 27 Kathy & Gary $50.00
Jul 27 Matina, Dave, and Aspen Proud of you, Skyler! Have fun and enjoy the race! $109.85
Jul 27 Dory, Nancy &Marty Goodman Skyler, You exemplify what a young adult should aspire to. Thank you for all you do!! $109.85
Jul 27 Anonymous $28.10
Jul 26 Debbie and Mike Kendrick Craig, thank you for raising awareness and supporting this devastating disease. $55.35
Jul 26 Zach McHugh Good luck Jake! Undisclosed amount
Jul 26 Jessica Yu This is a great cause. Thanks for supporting it Craig! Undisclosed amount
Jul 26 Donna Gambon Undisclosed amount