My Story…
I am very excited to announce that I am running the 2023 Falmouth Road Race on August 21st.
I am honored to be representing Team Valeria again, a foundation for KCNT1 research.
This foundation was created for Valeria, one of my wife Amber's incredible students. Raising awareness and funds for KCNT1 research is so important to us to honor Valeria's beautiful legacy as well as support all children and families suffering from this devastating medical condition.
Valeria was born on February 14, 2018 in Switzerland. A few days after her birth, she began suffering from epileptic seizures due to a mutation of her KCNT1 gene. This denied her cognitive and motor development. Her parents, Alexandra and Mario, fought for their daughter and worked with the Yale School of Medicine and neurogenetics from Harvard Medical School (Boston Children's Hospital) to design a medicine to help Valeria and children like her. Unfortunately, Valeria lost her battle against her disease in September of 2021. Though short, Valeria achieved many great things in her life and continues to do so. She helped science take a decisive step in the right direction. When dosed correctly and properly monitored, the drug (Valeriasen) developed for her has a promising future for others. Valeria paid the biggest price, but in return has given others a fighting chance. Please consider donating to an amazing organization.
Last year our team raised $12,000 which not only helped fund research for this rare disease, but initiated and funded a new project at Yale School of Medicine. Thank you for supporting #teamvaleria!
Donate to help Brian raise money for The 2023 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Jun 23 | Steeeveeeee | Undisclosed amount |
Jun 23 | Zach and Kath | $55.35 |
Jun 23 | Jayc | $273.35 |
Jun 20 | Anonymous | Undisclosed amount |
Jun 18 | Independent Painting Co. | $273.35 |
Jun 15 | Paige DeBlois | Undisclosed amount |
Jun 15 | Nicole, Kevin & Sophia | $55.35 |
Jun 15 | A Guy & His Pie | $55.35 |
Jun 14 | Britt | $55.35 |