My team
My Story....
Hi everyone! This year, I am running the Falmouth Road race as part of the FSHD Team. Facioscapulohumeral muscular dystrophy is the most prevalent form of muscular dystrophy, a progressive disorder that weakens muscles. There is no cure.
One in 8,000 people are affected. Our incredible neighbor and friend, Katelyn Zwickau (12yo) is one of them. Katelyn has been a classmate with my son throughout grade school. During this time, we have witnessed the disease progression for Kate as she lost her ability to walk and now gets around on her (really quite remarkable!) electric trike. Despite this, Kate remains one of the most vibrant kids we know! She and her family are fierce advocates for the research that needs to be done to further advance treatments for this debilitating condition, particularly for the pediatric population.
Please consider donating to help make new treatments and a cure possible for Kate and all those around the world living with this disease.
Description
Thank you for visiting my fundraising page!
I am so excited to be a member of TEAM FSHD!
YOU ARE LIGHTING THE WAY TO A CURE! Every dollar raised through the Falmouth Road Race helps those with FSHD live a better life and supports our work to advance the discovery of treatments and a cure for FSH Muscular Dystrophy (FSHD).
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Aug 03 | Giana DePasquale | Undisclosed amount |
| Jul 27 | dafney shufelt | $55.35 |
| Jul 26 | Childs Family Fund | $100.00 |
| Jul 26 | The Fortunato family | $164.35 |
| Jul 25 | Gali Family | $55.35 |
| Jul 25 | Linda | $109.85 |
| Jul 25 | The Fortunato family | $55.35 |
| Jul 25 | Anonymous | $28.10 |
| Jul 24 | The Greene's | $100.00 |
| Jul 24 | Jaime Racine | Undisclosed amount |
