Help Nora raise money

I am honored to be representing Team Valeria, a foundation for KCNT1 research at the 2023 Falmouth Road Race! Valeria is an incredible person and someone very near and dear to my soon-to-be sister-in-law Amber's heart. 

Valeria was born on February 14,2018 in Switzerland. A few days after her birth, she began suffering from epileptic seizures due to a mutation of her KCNT 1 gene. This denied her cognitive and motor development. Her parents, Alexandra and Mario, fought for their daughter and worked with the Yale School of Medicine and neurogenetics from Harvard Medical School (Boston Children's Hospital) to design a medicine to help Valeria and children like her. 

Unfortunately, Valeria lost her battle against her disease in September of 2021. Though short, Valeria achieved many great things in her life. She helped science take a decisive step in the right direction. When dosed correctly and properly monitored, the drug (Valeriasen) developed for her has a promising future for others. Valeria paid the biggest price, but in return has given others a fighting chance. Thank you for supporting #teamvaleria!!