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Help Jeremy raise money

For participating in The 2023 ASICS Falmouth Road Race

My Story…

We are thrilled to see the Falmouth Road Race-MINDlink Foundation connection continue into its 13th year. Once again, we will be running with the MINDlink team in the 7.1-mile seaside race from Woods Hole to Falmouth in Cape Cod.

 

MINDlink supports the clinical efforts of the Massachusetts General Hospital (MGH) Ataxia Center, and the Schmahmann Laboratory for Neuroanatomy and Cerebellar Neurobiology. Our team is running the Falmouth Road Race to help treat, cure, and prevent ataxia.

 

Ataxia is the loss of coordination of neurological functions resulting from diseases of the cerebellum. Ataxia affects children and adults and makes them lose balance and fall, movements become clumsy, and speech and vision are impaired. Ataxia also impairs intellectual processing and emotional life, adding a further unwelcome burden. And it can shorten lifespan. There are many causes of cerebellar ataxia – common ones like multiple sclerosis, stroke and tumors; others rarer like the inherited spinocerebellar ataxias and multiple system atrophy. And ataxic thinking from cerebellar problems is relevant in autism and schizophrenia, and in Alzheimer’s disease and frontotemporal dementias.

 

We know much of this because of the work in the MGH Ataxia Center and the Schmahmann Lab that you have helped support over the years. We are leaders in the field of cerebellar cognition, for our work in understanding the cerebellum and its functions, and in searching for new cures including running clinical trials to improve the lives of patients with ataxia.

 

Your support continues to make it possible to provide the best possible care to patients and families with ataxia, and to find new treatments that are leading to cures for these conditions.

 

The MINDlink team is running the Falmouth Road Race so that our patients with ataxia can walk.

 

Please join us in this effort. It makes an enormous difference.

 

Thank you for your help in making it possible!

 

Jeremy & Jinny

 

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For more information about clinical and research programs in the MGH Ataxia Center and the Lab for Neuroanatomy and Cerebellar Neurobiology, please visit our websites:

 

https://www.massgeneral.org/neurology/research/laboratory-for-neuroanatomy-and-cerebellar-neurobiology

 

https://www.massgeneral.org/neurology/treatments-and-services/ataxia-unit

 

http://mindlinkfoundation.org/

 

 

 

Donate to help Jeremy raise money for The 2023 ASICS Falmouth Road Race’s fundraising campaign.


Recent donors

Donation date Donor name Donation amount
Jul 31 Tina Dumas Thank you for your ongoing care and dedication! Next FDA approval for Troriluzole!!! $109.85
Jul 31 Bruce and Alexandra $109.85
Jul 31 John Ducharme Go Team Kulis 😊 $109.85
Jul 31 Kulis Family $109.85
Jul 30 Philip Alatalo As always, best wishes to the Kulis Family! $55.35
Jul 28 John and Glenda Speyer Thank you for this important, life-changing work you do. We are so pleased to support you both. Have a good run! Undisclosed amount
Jul 28 The Martins Good luck and cool weather to all! $28.10
Jul 28 Paul & Karen Silva $164.35
Jul 28 Kristin Gribble Glad to support this important cause. Have a good run! $60.00
Jul 28 Lady B. Love to the Kulis family <3 Undisclosed amount