My team
My Story…
Hello Family and Friends,
Thank you for visiting my fundraising page. For those who don't know, I was born with an extremely rare genetic condition called Periodic Fever Syndrom (PFS) that caused me to have reoccurring, unexplained fever episodes throughout my childhood.
For a majority of my life, I was receiving daily injections to help calm my bodies auto-immune response. Through constant help and support from BC Childrens, I was able to eventually stop receiving injections as my body grew. Cassie and Friends (an organization that helps kids with Juvenile Arthritis and other related rheumatic conditions (such as PFS)), helped me and my family a lot in creating support systems, and connecting us with families with similar conditions.
PFS is an extremely under researched and not well understood condition (for example, my diagnosis has changed 4 times). Less than 1 in a million children are born with PFS, and your (tax-deductible) donation will go towards research and support with kids that have similar conditions.
You can read more about my story here, in the Chilliwack Progress news paper: https://www.theprogress.com/news/teen-shares-struggle-with-rare-disease-and-the-help-he-got-from-bc-childrens-hospital/
Thank you for supporting my fundraising campaign!
Antoine
Description
This year, I will be running in support of kids and families affected by juvenile arthritis (JA) and other rheumatic diseases with Cassie + Friends Society. Cassie + Friends is a national charity focused 100% on kids and families impacted by juvenile arthritis and other rheumatic diseases. Cassie + Friends provides much needed education, awareness, support programs, advocacy and research to families across Canada.
What is JA?
JA is an incurable autoimmune disease in kids that attacks healthy joints and steals childhoods. It’s just as common as Juvenile Diabetes (every 3 in 1000 kids) and yet receives a fraction of the research, awareness and support. Kids with JA live with pain, fatigue and fevers, and many require aggressive medications like chemotherapy.
In 2023, Cassie + Friends is raising money for:
- Providing parents with access to a private Online Support Network
- Supporting families with emergency funds and medical equipment
- Helping fund Monthly Expert-Led educational webinars
- Connecting youth with trained peer mentors
- Fueling critical Advocacy + research into safer Treatments and a cure.
Thank you for your support towards a pain-free future for kids and families affected by juvenile arthritis and other rheumatic diseases!
#TeamCassieAndFriends #JAWontStopMe
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| May 27 | Sylvie & Arjen | $267.96 |
| May 27 | Your Dutch Connection | $54.31 |
