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FSHD Society

Raise money for FSHD Society

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.

The FSHD Society is the world's largest research focused patient organizations for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. 

Individuals

Click on an individual below to make a donation.

Recent donors

Recent donors
Date Name Amount
Jun 24 Kevin and Ann Dowling As a fellow cyclist, advance kudos to you! And as a mom to a son with FSHD, much gratitude for your efforts. I'll follow you on Strava! $1,065.85
Jun 23 Chris Mix, Dyne Therapeutics As a fellow cyclist, I'm totally impressed. Hope you have an epic day and a great ride! $107.35
Jun 23 Phyllis Steele Happy to join your rope team. Good luck! $27.48
Jun 22 Mark Stone $100.00
Jun 22 Fellow FSHDer As a fellow fshder, how could I not support such a studly enterprise!? Have fun! $107.35
Jun 22 Carol Fenster In memory of Larry $54.10
Jun 22 Lucia Go get those miles and elevation! You got this. $267.10
Jun 22 Ally & Sam Thank you, George, for all that you do! $107.35
Jun 22 Missy and Bill Cassidy George continues to be an inspiration for all of us! Happy to support your efforts again! Missy Undisclosed amount
Jun 22 Anonymous As someone with FSH, thank you! $50.00