Fragile X Research Foundation of Canada

The Fragile X Research Foundation of Canada (FXRFC) is a national non-profit, tax-exempt organization that facilitates community education, awareness and advocacy as well as supports and funds research into treatments of Fragile X Syndrome (FXS) and it's related conditions. Our Board of Directors is comprised of parents of individuals with FXS with a vision to create a world where FXS is recognized and supported in all aspects of health and social care, with effective and accessible treatments. 

FXS is caused by a mutation of a single gene (FMR1) on the X chromosome and is inherited, usually unknowingly. Those with FXS can have intellectual developmental disabilities, behavioural and learning challenges, various physical characteristics as well as medical problems.

The FXRFC publish a quarterly newsletter and information materials, and are working to enhance their resources and connect FX communities across Canada.