The Genesis Foundation for Children

TOGETHER, WE CAN MAKE A DIFFERENCE IN RARE DISEASE.

We are The Genesis Foundation for Children and we're on a mission to give patients and their families access to care that’s different. 

But we can’t do it with you.

Families affected by a rare disease or genetic disorder diagnosis often feel lost or frustrated, while also facing financial challenges that prevent their child from receiving the diagnosis, treatment, and coordinated care they need and deserve. Together with Mass General for Children and other specialized, targeted providers, The Genesis Foundation for Children helps thousands of families yearly obtain answers, a path forward, and a little peace of mind.

OUR MISSION

To provide funding and advocacy for children and families affected by rare diseases and genetic disorders from conception to adulthood.

OUR VISION

A world where all children with complex medical needs achieve their full potential.

OUR METHOD

For over 40 years, we have incorporated a holistic, in-depth approach to rare genetic disorders into all of our clinical, informational and therapeutic programs. We call it The Feingold Model of Coordinated Care, which is a comprehensive method of medical care that treats the whole patient and their family, not just the diagnosis.