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The Progeria Research Foundation

The Progeria Research Foundation

Raised: $23,395.00

Visit organization's website General registration opens May 1 Leaderboards

Contact

Name
The Progeria Research Foundation
Phone
9785352594
Email
info@progeriaresearch.org

Raise money for The Progeria Research Foundation

Progeria is a rare, fatal, “rapid-aging” disease. Without the discovery of new treatments, all children with Progeria will die of heart disease at an average age of just 14.5 years. The Progeria Research Foundation (PRF) was founded in 1999 in response to the complete lack of progress being made to help children with Progeria. Our mission: to discover treatments and the cure for Progeria and its aging-related disorders, including heart disease. Today, PRF continues to be the only organization in the world solely dedicated to this mission.

The Progeria Research Foundation is thrilled to once again be part of the Falmouth Road Race Numbers for Nonprofits program!

Thanks to our dedicated runners, PRF’s Falmouth Road Race team has raised nearly $200,000 gross since 2015, bringing us closer to additional treatments and the cure for Progeria.

Let’s make this year the best yet - support TEAM PRF today!

If you're interested in joining our team, contact Jennifer at jgillespie@progeriaresearch.org for details.

The Progeria Research Foundation's Mission:
To discover treatments and the cure for Progeria and its aging-related disorders, including heart disease.

What is Progeria?
Progeria, also known as Hutchinson-Gilford Progeria Syndrome (HGPS), is a rare, fatal genetic condition of accelerated aging in children. Without lonafarnib treatment, all children with Progeria die of the same heart disease that affects millions of normally aging adults (arteriosclerosis), but at an average age of just 14.5 years.

Together, we WILL find the cure!

Teams

Click on a team below to make a donation.

Recent donors

Recent donors
Date Name Amount
Aug 12 Aunt Betty and Uncle Walt Eric, Good luck you are such an inspiration! $218.85
Aug 11 Pam and Jon We expect video of you crossing the finish line!! Undisclosed amount
Aug 11 Anonymous Friends remembered Undisclosed amount
Aug 11 The Semples You're a great person doing great things and supporting a great cause! Thank you, Ian! Undisclosed amount
Aug 11 Your wife Try and catch me 😉 $55.35
Aug 10 Kyle Keep up the awesome work, Doc! Undisclosed amount
Aug 10 Dad Good luck with your 10th Falmouth Road Race, Dr. Ian! What a wonderful way to honor the memory of your friend. Love you - Dad $273.35
Aug 09 Anonymous Go John. Great cause! Undisclosed amount
Aug 09 Sandra Yi-Fuller Go, John! Cheering for you and the Progeria Research Foundation. $55.35
Aug 08 Deric Lipski Here u go $103.00