GO TEAM NF NORTHEAST!
Hi! Thank you for coming to my donation page! My name is Emma, and I'm thrilled to be participating in the Falmouth Road Race with Team NF Northeast once again this year. At 18 months old, I was diagnosed with Neurofibromatosis (NF), a genetic disorder that causes tumors to develop along the nerves in the body. NF Northeast’s mission is to find a cure for this condition.
Despite having mild symptoms of NF while growing up, my freshman year of high school, my doctors discovered a glioma near the pituitary gland in my brain. After monitoring its growth throughout high school, I had surgery in October 2017 to remove 50% of the tumor. Thankfully, I've been fortunate to have no further complications and continue to have MRI scans every 6 months to monitor the tumor's progress.
In October 2021, I began experiencing seizures. My doctors have not been able to ultimately find the definite cause of these sudden seizures. I am blessed to share that as of September 2023, I've been seizure free for one year! NF Northeast holds a special place in my heart, and I'm grateful for the opportunity to run the Falmouth Road Race each year, specifically dedicating this run to those fighting NF who are unable to advocate for themselves.
This charity means the world to me. All donations will go directly to NF Northeast and their efforts in finding a cure for NF. Thank you so much for your support!
Description
Thank you for visiting my fundraising page for the 2024 Falmouth Road Race - supporting Neurofibromatosis Northeast!
More than 100,000 Americans are living with neurofibromatosis, and it affects over 2 million people worldwide. Symptoms can differ greatly in occurrence, severity, and age of appearance between patients. This makes NF difficult to identify and diagnose. If NF is suspected, genetic testing is typically the most appropriate way to diagnose it.
Your donation is fully tax-deductible, as Neurofibromatosis Northeast is a 501c3 non-profit organization (EIN #04-3013709).
To learn more about Neurofibromatosis Northeast visit their website at: https://nfnortheast.org
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
May 09 | Donna Kramich | $109.85 |
May 08 | Neurofibromatosis Northeast | $28.10 |
May 03 | Heddia Djusberg | $109.85 |
Apr 29 | Mary Ozek | $55.35 |
Apr 28 | The Kramich Family | $109.85 |
Apr 28 | Carolina Moraga | Undisclosed amount |
Apr 28 | Julie Ozek | $55.35 |
Apr 26 | Sam Delaney | Undisclosed amount |