My Story…
Patrick’s Posse will be running our 24th consecutive Falmouth Road Race on August 18th in support of the Cystic Fibrosis Foundation. We have been blessed with significant advances for Patrick and the CF community since our first race in 2001. The funds we have raised have had a direct impact on scientific research and new treatments. Patrick has benefited from many of these including the breakthrough CF drug Trikafta, which he started in December of 2019. Since then, Patrick’s health has been excellent and his future brighter than ever. He’s currently living in South Boston and working in sales for a technology company.
Although there is much to celebrate, we need to continue to make advances against this disease for several reasons:
· Life expectancy for CF patients has vastly improved to age 40+, but that is simply not good enough.
· CF modulators (Trikafta) have been life changing for so many yet there are countless individuals, many of them friends, who do not yet have a suitable modulator for their CF mutation.
· Many CF patients continue to battle lung infections resulting in permanent lung damage. Research on how best to prevent/fight infections is critical.
· And most importantly there is still NO cure for CF, only treatments.
We truly appreciate the generosity so many of you have shown Patrick's Posse year after year. Thank you for your continued support!
2024 Posse Runners:
Susan, Christine and Michael O'Donnell
Diane, Jim and Patrick Massman
Donate to help Susan raise money for The 2024 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 01 | Steve and DeeDee | $109.85 |
Aug 01 | Janet Gladstein | $55.35 |
Aug 01 | Alison Scavone | $545.85 |
Aug 01 | Joe Keaney | $55.35 |
Aug 01 | Tara & Rodney Harris | $109.85 |
Aug 01 | Lindy D | $200.00 |
Aug 01 | Sarah Fulkerson | Undisclosed amount |
Jul 11 | Anonymous | $250.00 |