GO TEAM NF NORTHEAST!
This year I am running the Falmouth Road Race with Team NF Northeast to help raise funds to help end NF (Neurofibromatosis). My goal is to raise $1,000 to help provide resources and fund research.
One of my favorite people in the world, my niece Arianna, was born with NF. While we are very lucky that she has had relatively mild symptoms it does effect her everyday. Our little rockstar goes to multiple therapies weekly and regular doctor’s appointments, all with a smile on her face (and maybe a very strong side eye). Thank you in advance for any contribution to this cause to help end NF.
NF refers to a group of genetic conditions that cause tumors to grow on the nerves.
To learn more about NF Northeast go to www.nfnortheast.org
To learn more about NF and the Children’s Tumor Foundation go to CFT.ORG
Description
Thank you for visiting my fundraising page for the 2024 Falmouth Road Race - supporting Neurofibromatosis Northeast!
More than 100,000 Americans are living with neurofibromatosis, and it affects over 2 million people worldwide. Symptoms can differ greatly in occurrence, severity, and age of appearance between patients. This makes NF difficult to identify and diagnose. If NF is suspected, genetic testing is typically the most appropriate way to diagnose it.
Your donation is fully tax-deductible, as Neurofibromatosis Northeast is a 501c3 non-profit organization (EIN #04-3013709).
To learn more about Neurofibromatosis Northeast visit their website at: https://nfnortheast.org
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Jun 20 | Cowing family | Undisclosed amount |
Jun 20 | McDermott | $45.54 |
Jun 20 | The Delaneys | $109.85 |
Jun 20 | $25.00 | $28.10 |