My Story…
Hi everybody, this year I have decided to run the Falmouth Road Race and I am running in memory of my beautiful daughter Lilah on the Heart Warrior Foundation team. Lilah was born with a rare congenital heart defect with no known cure. We were lucky to have her home for several months with admissions in and out of the hospital. We brought her in for her first open heart surgery last May and she had complications which eventually led to heart failure and being put on the heart transplant list. We waited for almost five months but we didn’t receive a heart in time. She passed away shortly after her first birthday, though her time with us was short, she brought us so much joy and smiled through breathing tubes and ECMO. Please consider donating to this great cause as it helps patients and their families tremendously.
The Heart Warrior Foundation is a Massachusetts based Nonprofit 501c3 (EIN 81-3998870) (MA AG 063269). Our foundation supports children diagnosed with congenital heart defects and their families and medical professionals, specifically through Boston Children's Hospital. We accomplish this through our many programs aimed at a variety of aspects of CHDs. Our foundation programs include the following:·
Thomas Heilner Memorial Scholarship - yearly $1000 scholarship given to a student pursuing a career in the field of medicine.·
Thomas Sauvigne Memorial Scholarship – 2 yearly $5000 scholarships given to Boston Children’s Hospital nurses pursuing higher education.·
Boston Children’s Hospital Heart Center Donation – Monetary donations to the Heart Center.·
In 2021, we developed a specific fund called “The Peggy Fund” at Boston Children’s Hospital for the mental health and wellness of cardiac nurses. Since its inception, we have donated $225,000·
In 2023, we developed a specific fund called the Thomas Heilner Legacy Fund at Boston Children’s Hospital to assist the cardiac translational research lab. This lab assists with cardiac research and improving outcomes. This fund was started with $100,000. ·
Donation to research studies in the field of congenital heart defects.·
Inpatient Meal Program – Yearly donations of $25 Boston based restaurant gift cards to inpatient families at Boston Children’s Hospital.·
BCH Cupcake Parties - Monthly sponsored cupcake parties on the cardiac floor at Boston Children’s Hospital.·
Medical ID Bracelet Program – Donation of medical ID bracelets for children affected by congenital heart defects.·
Tommy Tree Program – Donation of memorial plaque and planting of trees of families’ choosing for children who have passed away from congenital heart defects.·
Healing with Happiness Program – give CHD children a New England experience, trip, gift, or “wish” of their choosing.
Description
Non-profit that assists and supports families and children affected by congenital heart defect defects. Heart Warrior Foundation has many programs that directly impact the Heart Center at Boston Children's Hospital.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Jul 26 | Christine Westgate | Undisclosed amount |
Jul 24 | Curtis family | $55.35 |
Jul 24 | Kelsey Gagnon | $273.35 |
Jul 24 | Jordan Briseno | Undisclosed amount |
Jul 24 | Brian Sansoucy | $109.85 |
Jul 24 | Susan Rocca | $55.35 |
Jul 24 | The Coughlin Clan | $55.35 |
Jul 24 | Adam Darling | $273.35 |
Jul 24 | Cousins Johanna, Jimmie & Elijah | $22.65 |
Jul 24 | Papa and Gramme | $545.85 |