Description
Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and ultimately, premature death. It affects approximately 1 in every 5,000 male births. There are approximately 15,000 individuals diagnosed with Duchenne alive today in the United States.
Our Mission: Jett Foundation empowers people and families impacted by Duchenne muscular dystrophy through the development of transformative programming, educational opportunities, and ongoing support for every stage of a Duchenne journey.
Team Jett events, such as the Falmouth Road Race, encourage families and friends to activate their muscles in support of Jett Foundation and the work we do to provide enriching programs and resources for individuals and families impacted by Duchenne. For the 5th time, our dedicated Falmouth runners will move their muscles for those who cannot.
Just some of our programs and resources for families include:
- Camp Promise: a free week of summer camp at five locations across the country for kids and young adults with select neuromuscular disorders like DMD, SMA, Becker, and more.
- Jett Giving Fund: a vital assistance program with three branches: The Accessible Vehicle Fund helps families obtain safe, accessible transportation; The Emergency Fund provides grants to families facing unexpected, emergency situations; & the Equipment Assistance Fund helps families with small accessibility or medical items that are either not covered by insurance or too expensive.
- Family Workshops: a national educational workshop series for families to learn about Duchenne care, resources, and treatments from local clinicians, experts, and industry partners.
- National Community Ambassador program: an opportunity for parents, friends, and family members of individuals impacted by Duchenne to share resources and educate within their community. Ambassadors also facilitate local support groups and events for parents and families.
Thank you for supporting Jett Foundation's dedicated athletes at the Falmouth Road Race! We can't do this without you.
Jett Foundation, Inc. is a 501(c)3 registered tax-exempt nonprofit organization. Our Federal Tax ID is 04-3563445.
Team members
Click on one of our team members below to make a donation.
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Bailey Parks
Raised: $2,014.44
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Ali Scagnelli
Raised: $1,654.90
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Tyler Diniz
Raised: $1,553.45
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Nick's Fundraising Goal
Raised: $1,384.60
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John Wing
Raised: $1,234.40
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Alexa Egan
Raised: $1,120.30
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Matt Sullivan
Raised: $1,020.07
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Nora Byrne
Raised: $1,018.45
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Julia Collette
Raised: $873.75
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Kyla
Raised: $845.75
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Alex Tuckerman
Raised: $829.30
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Sarah Vaughan
Raised: $756.85
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David Collette
Raised: $254.95
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Bailey Parks
Raised: $109.85
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Emily Hubert
Raised: $0.00
Team captain
Recent donors
Donation date | Donor name | Donation amount |
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Mar 07 | Johnwing | $109.85 |
Mar 07 | Nick Mastrandrea - Edgewise Therapeutics | $100.00 |
Mar 05 | John Wing | $109.85 |