Description
TOGETHER, WE CAN MAKE A DIFFERENCE IN RARE DISEASE.
We are The Genesis Foundation for Children and we're on a mission to give patients and their families access to care that’s different.
But we can’t do it with you.
Families affected by a rare disease or genetic disorder diagnosis often feel lost or frustrated, while also facing financial challenges that prevent their child from receiving the diagnosis, treatment, and coordinated care they need and deserve. Together with Mass General for Children and other specialized, targeted providers, The Genesis Foundation for Children helps thousands of families yearly obtain answers, a path forward, and a little peace of mind.
OUR MISSION
To provide funding and advocacy for children and families affected by rare diseases and genetic disorders from conception to adulthood.
OUR VISION
A world where all children with complex medical needs achieve their full potential.
OUR METHOD
For over 40 years, we have incorporated a holistic, in-depth approach to rare genetic disorders into all of our clinical, informational and therapeutic programs. We call it The Feingold Model of Coordinated Care, which is a comprehensive method of medical care that treats the whole patient and their family, not just the diagnosis.
Team members
Click on one of our team members below to make a donation.
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Delaney Busch
Raised: $4,300.25
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Katelyn Barrera
Raised: $3,239.85
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Matthew Bearce
Raised: $2,578.65
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Arielle Schwartz
Raised: $2,310.79
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Team Cayer
Raised: $2,197.70
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Alex Stulac
Raised: $1,662.65
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Luca McGlothin
Raised: $1,452.64
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Rebecca Collins
Raised: $1,436.90
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Ryan Menard
Raised: $1,137.55
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Meadow James
Raised: $1,031.25
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Team Croft
Raised: $971.25
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Jesse Fowler
Raised: $823.57
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Ben Brostoff
Raised: $702.90
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Tony Musante
Raised: $476.15
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Nicole Bongiovanni
Raised: $0.00
Team captain
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Apr 22 | Kaitlyn Crowe | $273.35 |
Apr 22 | Good luck Arielle! Have a great race :) | $28.10 |
Apr 22 | Katy Droumbakis | $109.85 |
Apr 19 | Jesse Fowler | Undisclosed amount |
Apr 18 | Anonymous | Undisclosed amount |
Apr 18 | Amy George Blair | $109.85 |
Apr 18 | David Barmak | $273.35 |
Apr 18 | Henry Sullivan | $273.35 |
Apr 17 | Linda Wyrostek | $55.35 |
Apr 17 | Kim V. Marrkand | $273.35 |