Our Mission

“Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF."

What is neurofibromatosis (NF)?

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). The neurofibromatoses affects more than 120,000 Americans.

NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with Neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.

Watch a short video here about Neurofibromatosis!

Looking to go that extra mile to help support the NF community?

You can play a vital role in helping us spread NF awareness and raise funds to find treatments and a cure by using our marketing materials to help find local business sponsors, secure additional raffle items, and get media involvement.

Printable Posters

You can use our marketing materials to:

Contact local businesses to sponsor, donate event supplies or raffle prizes, and ask them to display the event poster. Contact libraries, community centers, coffee spots and restaurants, Knights of Columbus, YMCA, and other event and community spaces to display the event poster and help spread the word share press release with local media sources (i.e. tv, radio, newspapers, magazines, etc.)

Questions:

Feel free to call or email the NF Network: Debbie Rinella nfstrong@nfnetwork.org / 773-484-0217 
 


We need You!

We want to have all kinds of fun ducky swag and prizes. But, we can't do it without you! Please consider sponsoring or gifting a raffle prize to our non-profit 501(c)(3) organization to make this possible.

Interested in tier 1 or 2 sponsorship? Want in on one of the above? Contact Debbie:

Feel free to call or email the NF Network: Debbie Rinella nfstrong@nfnetwork.org / 773-484-0217

Full Sponsor Deck

Here are some step by step instructions:

How do I set up my personal pledge page?

To set up your pledge page just follow the steps below:

1. Go to the event registration page on Race Roster

2. Click Sign In on the top right hand corner

3. Once you sign in, click Menu on the top right hand corner

4. A menu will appear, scroll down and click Share fundraising page and you will land on your pledge page for this specific event

5. To the right click EDIT PAGE and make any necessary adjustments to your pledge goal, adding text, and adding an image to your page

6. Click SAVE UPDATED FUNDRAISING INFORMATION once updates have been completed

How do I share my pledge page?

Now that you have created and customized your pledge page, let's share it! (If you haven't customized your pledge page, click here)

There are easy 2 ways to share your pledge page:

Easy way no. 1:

1. Go to the Race Roster registration page (find the event by clicking here)
2. Once you are on the event page, click Pledge Participant
3. Search for your pledge page by entering your first name OR last name OR email address in the search bar provided and hit the search icon
4. Once you find your name click the PLEDGE button to the right
5. On your personal pledge page, you will see 3 buttons that you can click to share on different mediums
6. Click your preferred sharing method and share away!

Easy way no. 2:

1. Sign in to your Race Roster account (need help? just click here for instructions to sign into your account)
2. Make your way to the Participant Dashboard and your event registration
3. Scroll all the way down to the section Ask For Pledges
4. Along the bottom of that section you will see 3 buttons: Share via Twitter, Share via Facebook, Share via Email
5. Click your preferred way of sharing and follow the prompts
6. You will need to click Tweet, Post, or Send (depending on your method of sharing) to finalize the share