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With one in every 2,500 births, NF is one of the most common rare genetic disorders in the US that many people haven't even heard of. The need for services for children, adults, and their families within our community is crucial. To meet this need, the NF Network promotes and advocates for scientific research and provides outreach through education and awareness. We need your support to continue these services! Learn more about the NF Network below.
Registration fees
Prices are inclusive of mandatory charges, items, and fees
Running for NF
Registration closes in 7 months 7 days-
No walk, run, swim, cycling event in your area for NF? No problem! Sign up for free, and raise money through this platform!
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ClosedMar 5 – Dec 4
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Free
Sign up for free and raise money!
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Register for Running for NFFree
Day of Pricing
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NF Network
What is neurofibromatosis (NF)?
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). The neurofibromatoses affects more than 120,000 Americans.
NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with Neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.
Our Mission
“Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF."
Watch a short video here about Neurofibromatosis!
Contact information
- Event contact
- Debbie Rinella
- nfstrong@nfnetwork.org
- Phone
- 773-484-0217
- Website
- Visit website
