My Story…
Our Hannah was diagnosed with Dravet Syndrome earlier this year after a series of devastating seizures started at 6 months old. Hannah is a resilient little warrior and has never stopped smiling through it all. Dravet is more than just epilepsy and our goal is to raise awareness and money to fund life changing research, as we enter a new era in gene therapy. While we won't be participating in the run in Brockville, we will be doing the Eramosa River run (9am Sept 27 at the covered bridge in Guelph), sporting our Dravet purple in solidarity and we encourage all of you to do the same. Register, donate and spread the word!
Recent donors
Donation date |
Donor name |
Donation amount |
Sep
24
|
Anonymous
|
$269.32
|
Sep
20
|
Kim Kilpatrick
Sending your family all the warmth and love. Have another GREAT run!
|
$54.63
|
Sep
16
|
Anonymous
|
Undisclosed amount
|
Sep
11
|
Grandad
Hope everyone has a fun time !
|
$10.00
|