Saturday, June 1, 2025 Check in at 9AM - 5K begins at 10AM | Macken Park - Festival Pavilion 1002 Clark Ferguson Dr. | North Kansas City, MO |
DO GOOD | FEEL GREAT
With one in every 2,500 to 3,000 births NF is one of the most common rare genetic disorders in the US that many people haven't even heard of. The need for services for children, adults, and their families within our community is crucial. To meet this need, the NF Network promotes and advocates for scientific research and provides outreach through education and awareness. We need your support to continue these services!
#NFstrong is NOT a Race, It’s a blanket of love for our community - so enjoy a beautiful morning and take in the scenic views, knowing that every stride is making a difference!
How to Make Your Walk Successful: |  |
Registration fees
In-person Registration
Price changes in 4 months 10 days-
Walk with us and rally together in the fight against neurofibromatosis!
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Register for In-person Registration$20.00
Early Bird Pricing
Now registering Dec 5 – May 4 -
$25.00
Regular Pricing
May 5 – May 30 -
$30.00
Day of Pricing
May 31 – May 30
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Virtual 5K
Registration closes in 5 months 6 days-
Wherever you may be walking or running - find a time and place and let's rally together in the fight against neurofibromatosis! T-shirts are not included with the virtual option.
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Register for Virtual 5K$10.00
Virtual
Now registering Dec 5 – May 30
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NF Network
Our Mission
“Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF."
What is neurofibromatosis (NF)?
Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. This progressive disorder affects all races, all ethnic groups and both sexes equally. NF is one of the most common genetic disorders in the United States (one in every 2,500 to 3,000 births). The neurofibromatoses affects more than 120,000 Americans.
NF is an autosomal dominant genetic condition; it is not contagious. Approximately 50% of those affected with Neurofibromatosis have a prior family history of NF. The other 50% of cases are the result of spontaneous genetic mutation. If an individual does not have NF, s/he can not pass it on to his/her children.
Watch a short video here about Neurofibromatosis!
Contact information
- Event contact
- Debbie Rinella
- nfstrong@nfnetwork.org
- Phone
- 773-484-0217
- Website
- Visit website
