Help Nicholas raise money

I am so excited to be running the Falmouth Road Race with the CF Foundation! 

Our family has benefited directly from the CF Foundation since Nora’s diagnosis when she was 6 weeks old. Back then, we knew little about cystic fibrosis, but we were able to learn about CF quickly through the resources and reading materials that the foundation provides to CF patients and their families. The CF foundation continues to fund research that drastically improves the lives of CF patients. Since Team Nora’s last fundraiser, Nora started Trikafta - the gene therapy that has had a significant impact on the CF community. 

We are so grateful for the work of the CF families and supporters who came before us to help produce breakthroughs like Trikafta. But the work is not done. There is still a large portion of the CF community that do not qualify for gene therapy, and more that can be done to help CF patients live normal healthy lives. For Nora, that could mean less medications and physical therapy and more time for her favorite things like going to the playground, collecting rocks at the beach and eating ice cream 😊. 

Team Nora won’t stop until CF stands for CURE FOUND!