My team
OUR FINISH LINE SAYS ALS DONE!
In December 2021, our world changed forever when our mom was diagnosed with Amyotrophic Lateral Sclerosis (ALS).
ALS is a relentless, progressive disease with no known cure that slowly robs a person of their ability to move, speak, and eventually breathe.
Our mom met this cruel diagnosis with unimaginable strength. She fought with everything she had, holding on to her grace, her compassion for others and her deep love for her family. On November 19, 2023, we lost her to this merciless disease.
Throughout that journey, our lives were completely upended—but we weren’t alone. Thanks to the incredible support of organizations that ALS One partners with, like CCALS and ALS TDI, we were able to take care of our mother at home and communicate with her for as long as possible. They provided vital equipment and support—always free of charge—and gave us the tools care for her with dignity.
Now, we’re running the Falmouth Road Race in her honor. It’s our way of giving back to ALS One and continuing our mom’s legacy of helping others. She was the kind of person who always elevated those around her and supported anyone in need.
If you’re able, please consider supporting our run. Your donation helps ALS One bring compassion, care, and research to more families like ours.
With love and gratitude,
Jess Hajjar, Koury Hajjar, Matt Parlon & Charlie Parlon
Description
Thank you for visiting my fundraising page for the 2025 Falmouth Road Race - supporting ALS research & equipment and resources for individuals living with ALS now.
Your support means the world to me and to all of us and will help to advance critical research via their research team at MGH, UMass Medical School, and ALS TDI, while providing essential equipment such as lifts, ramps, wheelchairs and assistive technology devices to individuals currently living with ALS via ALS ONE's care team at Compassionate Care ALS - all incredible partners that make up ALS ONE.
Your donation is fully tax-deductible, as ALS ONE is a 501c3 non-profit organization (EIN #47-4984263).
• DONATE VIA YOUR DONOR-ADVISED FUND HERE (Be sure to indicate that you are supporting my run so that ALS ONE can add it to my fundraising page when received.
To learn more about ALS ONE, visit their website at: https://alsone.org/
A big THANK YOU to all who have donated so far!
| Donation date | Donor name | Donation amount |
|---|---|---|
| May 14 | Chris & Michelle Dillon | Undisclosed amount |
| May 10 | Papa | $1,090.85 |
| May 07 | Sue Fitts | $109.85 |
| May 06 | Randy & MaryEllen | Undisclosed amount |
| May 04 | Bob and Genia | $273.35 |
| May 02 | Bill Walsh | $250.00 |
| May 02 | Clare McSweeney (Grammy) | $109.85 |
| May 02 | Nick Grandy | $109.85 |
| Apr 30 | Dawn Parlon | $109.85 |
| Apr 29 | Zach Dunphy | $22.65 |
