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Help Jeremy raise money

For participating in The 2025 ASICS Falmouth Road Race

My Story…

We are thrilled to see the Falmouth Road Race-MINDlink Foundation connection continue into its 15th year. Once again, we will be running with the MINDlink team. Jinny will run the 7.1-mile At-Home edition, and Jeremy will run the seaside race from Woods Hole to Falmouth in Cape Cod.

 

MINDlink supports the clinical efforts of the Massachusetts General Hospital (MGH) Ataxia Center, and the Schmahmann Laboratory for Neuroanatomy and Cerebellar Neurobiology. Our team is running the Falmouth Road Race to help treat, cure, and prevent ataxia.

 

Ataxia is the loss of coordination of neurological functions resulting from diseases of the cerebellum. Ataxia affects children and adults and makes them lose balance and fall, movements become clumsy, and speech and vision are impaired. Ataxia also impairs intellectual processing and emotional life, adding a further unwelcome burden. And it can shorten lifespan. There are many causes of cerebellar ataxia – common ones like multiple sclerosis, stroke and tumors; others rarer like the inherited spinocerebellar ataxias and multiple system atrophy. And ataxic thinking from cerebellar problems is relevant in autism and schizophrenia, and in Alzheimer’s disease and frontotemporal dementias.

 

We know much of this because of the work in the MGH Ataxia Center and the Schmahmann Lab that you have helped support over the years. We are leaders in the field of cerebellar cognition, for our work in understanding the cerebellum and its functions, and in searching for new cures including running clinical trials to improve the lives of patients with ataxia.

 

Your support continues to make it possible to provide the best possible care to patients and families with ataxia, and to find new treatments that are leading to cures for these conditions.

 

The MINDlink team is running the Falmouth Road Race so that our patients with ataxia can walk.

 

Please join us in this effort. It makes an enormous difference.

 

Thank you for your help in making it possible!

 

Jeremy & Jinny

 

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For more information about clinical and research programs in the MGH Ataxia Center and the Lab for Neuroanatomy and Cerebellar Neurobiology, please visit our websites:

 

https://www.massgeneral.org/neurology/research/laboratory-for-neuroanatomy-and-cerebellar-neurobiology

 

https://www.massgeneral.org/neurology/treatments-and-services/ataxia-unit

 

http://mindlinkfoundation.org/

 

Donate to help Jeremy raise money for The 2025 ASICS Falmouth Road Race’s fundraising campaign.


Recent donors

Donation date Donor name Donation amount
Jul 22 Wendy and Jeremy Stern $250.00
Jul 22 Kristin Gribble Inspired by the Kulis family. Keep up the good work! $109.85
Jul 22 The Razzle Dazzle Adventure Team Honoring the Kulis family! You rock! $109.85
Jul 22 Susan & Steve Mills $55.35
Jul 21 Katie Libera In support of the Kulis Family $109.85
Jul 21 Steve and Ruthanne Molyneaux In support of the Kulis family $55.35
Jul 21 Matt Johnson This donation is inspired by the Kulis Family. Best of luck with your research and efforts to find cures! $109.85
Jul 21 S F Ricky $109.85
Jul 21 Jonny and Pam Kruskal With applause and gratitude for your extraordinary work. $273.35
Jul 21 Jill Porter For all the SCA6 ataxians, especially my husband, Ken $109.85