Help Brian raise money

Another year supporting an amazing foundation! 

To be brutally honest, I'm not a fan of running. However,  I am a fan of this amazing foundation. I am truly honored to be representing Team Valeria again, a foundation for KCNT1 research.

This foundation was created for Valeria, one of my wife Amber's incredible students. Raising awareness and funds for KCNT1 research is so important to us to honor Valeria's beautiful legacy as well as support all children and families suffering from this devastating medical condition. 

Valeria was born on February 14, 2018 in Switzerland. A few days after her birth, she began suffering from epileptic seizures due to a mutation of her KCNT1 gene. This denied her cognitive and motor development. Her parents, Alexandra and Mario, fought for their daughter and worked with the Yale School of Medicine and neurogenetics from Harvard Medical School (Boston Children's Hospital) to design a medicine to help Valeria and children like her. Unfortunately, Valeria lost her battle against her disease in September of 2021. Though short, Valeria achieved many great things in her life and continues to do so. She helped science take a decisive step in the right direction. When dosed correctly and properly monitored, the drug (Valeriasen) developed for her has a promising future for others. Valeria paid the biggest price, but in return has given others a fighting chance. Please consider donating to this amazing organization. 

Last year our team raised tens of thousands of dollars which not only helped fund research for this rare disease, but initiated and funded a new project at Yale School of Medicine.

Thank you for supporting #teamvaleria!

Brian