My Story…
I’m raising money for a special boy called Jack. Jack is a bright loving 7-year-old boy diagnosed with Childhood Dementia caused by Batten’s Disease (CLN3), a rare genetic disorder that affects 1 in 100,000 live births worldwide.
His family is desperately fundraising for access to life-changing trial medication that costs $180,000 per year. Your donation to my run will help keep Jack’s treatment accessible and provides hope for his future.
Description
This year, I’m proudly taking part in the 2026 Chevron City to Surf for genU! I’m doing this to empower Western Australians living with disability - helping them grow their independence, achieve their goals, and live life to the fullest. Every donation fuels real change 🙌💙 Sponsor me and let’s cross this finish line together!
Achievements
Recent Donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Apr 16 | Tracey Muir | A$31.65 |
| Apr 16 | Private | Undisclosed amount |
