Hydrocephalus Association

Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus. 

Hydrocephalus can affect anyone, at any age. This life-altering and potentially life-threatening condition occurs when cerebrospinal fluid (CSF) builds up abnormally, putting pressure on the brain. The most common treatment is brain surgery to implant a shunt, a device that helps drain excess fluid. However, shunts are not a cure—they frequently fail, often requiring multiple brain surgeries over a patient’s lifetime, sometimes more than 100.

You can make a difference. I am training for and running the 50th Anniversary Grandma's Marathon to support the Hydrocephalus Association (HA), the leading nonprofit organization dedicated to funding critical research, raising awareness, and providing support for the over 1 million people in the U.S. living with hydrocephalus. Your donation to my fundraiser will not only fuel my journey but also help HA advance its mission to improve lives and find a cure.

Together, we can bring hope to those affected and drive progress toward better treatments and, ultimately, a cure.