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Hydrocephalus Association

Hydrocephalus Association

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Raise money for Hydrocephalus Association

The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus. 

Hydrocephalus can affect anyone, at any age. This life-altering and potentially life-threatening condition occurs when cerebrospinal fluid (CSF) builds up abnormally, putting pressure on the brain. The most common treatment is brain surgery to implant a shunt, a device that helps drain excess fluid. However, shunts are not a cure—they frequently fail, often requiring multiple brain surgeries over a patient’s lifetime, sometimes more than 100.

You can make a difference. I am training for and running the 50th Anniversary Grandma's Marathon to support the Hydrocephalus Association (HA), the leading nonprofit organization dedicated to funding critical research, raising awareness, and providing support for the over 1 million people in the U.S. living with hydrocephalus. Your donation to my fundraiser will not only fuel my journey but also help HA advance its mission to improve lives and find a cure.

Together, we can bring hope to those affected and drive progress toward better treatments and, ultimately, a cure.

Individuals

Click on an individual below to make a donation.

Recent donors

Recent donors
Date Name Amount
Jun 21 Katie, Andrew, & Vivi You are an inspiration with your dedication to your kids (and to running). Love you! Undisclosed amount
Jun 20 Paul & Angie Undisclosed amount
Jun 19 Dave and RaeMarie You got this, John!! $54.10
Jun 19 John Canny Honored to run and support this organization! $533.35
Jun 19 Charnise Proud of you❤️ $267.10
Jun 18 Rhonda Neal Thank you for sharing your story. It’s been a pleasure following your journey and shedding light to your son’s condition. $27.48
Jun 17 Jenn Ulmer Undisclosed amount
Jun 17 Jackie B Thank you for supporting this cause Ryan! You got this! I wish I could be cheering for you at the finish line! $107.35
Jun 17 The Steed Stampede We are so proud of you both! The Stampede loves you $107.35
Jun 14 Jill Byerly Run on John!! It's a BEAUTIFUL marathon route!! $54.10