My Story…
I’m running this marathon for my 4-year old son. He has congenital hydrocephalus, and has already undergone 3 surgeries. We are so thankful for modern medicine and incredible doctors, as he’s doing amazing! We’re endlessly grateful for that.
But hydrocephalus doesn’t end, it doesn’t go away. The uncertainty constantly leering in the background- is this a virus or a shunt malfunction? Do we wait it out or rush to the closest children’s hospital?
I’m fundraising for the Hydrocephalus Association because their work supports families like ours, and advances better detection, treatment and research — so those living with hydrocephalus, like my son, can continue thriving. I’m running for his strength and for continued progress.
Thank you for supporting this run and this cause ❤️
Description
Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus.
Hydrocephalus can affect anyone, at any age. This life-altering and potentially life-threatening condition occurs when cerebrospinal fluid (CSF) builds up abnormally, putting pressure on the brain. The most common treatment is brain surgery to implant a shunt, a device that helps drain excess fluid. However, shunts are not a cure—they frequently fail, often requiring multiple brain surgeries over a patient’s lifetime, sometimes more than 100.
You can make a difference. I am training for and running the 50th Anniversary Grandma's Marathon to support the Hydrocephalus Association (HA), the leading nonprofit organization dedicated to funding critical research, raising awareness, and providing support for the over 1 million people in the U.S. living with hydrocephalus. Your donation to my fundraiser will not only fuel my journey but also help HA advance its mission to improve lives and find a cure.
Together, we can bring hope to those affected and drive progress toward better treatments and, ultimately, a cure.
Recent donors
| Donation date | Donor name | Donation amount |
|---|---|---|
| Mar 24 | Katelyn Schneider | Undisclosed amount |
| Mar 24 | Dianna Butler | $107.35 |
| Mar 24 | Ruth and Ted Koelmel | $54.10 |
| Mar 24 | KH | Undisclosed amount |
| Mar 24 | Jason & Kara DeArman | $107.35 |
| Mar 23 | Chris and Barb Whetstine | $54.10 |
| Mar 23 | Kevin & Amanda Whetstine | $54.10 |
| Mar 22 | Monica and LeeAuker | $213.85 |
| Mar 22 | Bailey & Calvin | Undisclosed amount |
| Mar 22 | Kelsi | $54.10 |