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My Story…

My name is Drew and I’ve had the privilege of being a big part of Charlie’s life for the past 6 years. She has changed my life for the better in a 100 different ways, through her spirit, her resilience + her strength + bravery in the many things she goes through. I love this kid.
Charlie wasn’t supposed to see her 1st birthday, she turns 10!! on June 22nd, we are celebrating this miraculous milestone by rolling + running 21kms together in the Scotiabank half marathon to raise funds for Cure SMA. Charlie had to get special permission to take part because the minimum age is 16, so this is pretty special.
Please sponsor me if you can!
Tax receipts are provided instantly!
Thank you!


SMA is the number 1 genetic killer of children under the age of 2. SMA is like ALS in children. Children lose the ability to walk, eat, swallow, and breathe on their own. They often pass away from complications due to the common cold.

Charlie-Anne was given 3 months to live at 6 months of age and is turning TEN June 22nd, the day before the race! She is celebrating by rolling 21k ! to raise funds to cure SMA!

Join us and help us raise funds to celebrate this miraculous milestone and help others living with this devastating diagnosis! Prizes for top fundraisers!

Recent donors

Donation date Donor name Donation amount
Jun 17 Braham Teja $50.00
Jun 17 Ian Williams $20.00
Jun 17 Brent Philip $150.00
Jun 17 Kirk Barbour $100.00
Jun 17 Karen & Peter Butler $200.00
Jun 17 Clark MacPherson $50.00
Jun 17 Kenneth Morrison Very proud of you for doing this Ken $100.00
Jun 17 Ross MacDonald $250.00
Jun 16 Steve Liddicoat Undisclosed amount
Jun 15 David Adderley Undisclosed amount