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Help us raise money

For participating in 9th Annual Dravet Syndrome National Walk

Our story…

In 2010 Mirai was diagnosed with a Dravet Syndrome, as many of you know this is a rare and devastating form of epilepsy. Our journey with this syndrome has not been an easy one- as a family, we have seen how devastating and traumatic this syndrome can be- as we watch Mirai deal with his daily seizures and also see how he has regressed over the years. As difficult as this journey is, the one thing we know for sure is that Dravet Syndrome does not define Mirai, and part of our journey is to spread awarness about this syndrome and help doctors to continue to do research to find a cure. We always look forward to this walk every year, and we hope you can help us on our journey to find a cure and donate to our team. NO AMOUNT IS TOO SMALL. We appreciate and thank you for your support.

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
Sep 13 Kathleen and Liam We love you MJ❤️❤️❤️❤️ $108.31
Sep 12 Anonymous Undisclosed amount
Sep 12 John, Mychele, sienna & Alexis Undisclosed amount
Sep 12 Bill, Tony & Michael Lavender's brothers! $108.31
Sep 11 Dawn Lavender $54.63
Sep 11 Dawn Lavender I only wish I could offer more! $108.31
Sep 11 Anonymous Undisclosed amount
Sep 11 Anonymous $110.00
Sep 08 Anonymous Undisclosed amount
Sep 03 John, Debra and Shawn Nurse Such a special young man! Good luck with your walk! ❤️ Undisclosed amount