Skip to main content

Help James raise money

For participating in The 2021 ASICS Falmouth Road Race

Make a donation

Select a donation amount

Donations for this organization are currently closed.

My Story…

Hi Everyone,

I can't believe that this will be my third Falmouth Road Race.  What a 3 years it has been.  Between Jojo getting her new leg braces, and walker to learn how to walk, mastering her first wheelchair, her 4th surgery and a second year of a pandemic, Jojo continues to amaze us every day.  She is excited to be starting Boston Public School and becoming a big sister in the fall.  For those of you returning, we want to thank you for all of your support and for those of you first time visitors to my fundraising site welcome and see Jojo's story below.


When we learned at 20 weeks that our baby (we let her sex be a surprise!) had Spina Bifida, neither of us had any idea what that meant. And while we were initially devastated, as we learned more about people with Spina Bfida and the lives they lead, we were very encouraged. 

Within a week, we were in the hands of the wonderful Myelo Clinic at Boston Children's Hospital, meeting with the specialists who would become Jojo's doctors. And they have been amazing, especially her neurosurgery team. 

Through her first 2 years, Jojo has had 4 major surgeries and a few other challenges, but she hasn't let any of that get in her way. She's a very independent little lady who loves to look at her books, work on standing and walking in her AFOs and HKAFOs, dance in her wheelchair, crawl around the house, scream at the cat, play with mama, read with dada and of course watch the local news, Bluey and her letters show (Wheel of Fortune). 

We're very proud to be her parents, and I am honored to be running in her name, and of all those that SBAGNE supports.

Thank you for taking the time to read this and for donating to this great organization.  


While no one knows the cause, Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States. It’s a type of neural tube defect (NTD) that occurs when a babies neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine”. Typically occurring within the first 28 days of pregnancy, while the neural tube is forming, Spina Bifida often occurs before a woman knows she is pregnant. 

Commonly referred to as the “snowflake condition” of birth defects because no two cases are the same, Spina Bifida can range from mild to severe. The severity depends on everything from the size of the opening to the location on the spine and is often paired with hydrocephalus (spinal fluid pressure and swelling of the brain) and a Chiari Malformation (where brain tissue extends into your spinal canal).


SBAGNE is a group of parents, adults with Spina Bifida, and dedicated professionals working together to support and encourage families and individuals throughout the Greater New England area. It is our goal to enrich the lives of those affected by Spina Bifida through education, parental support, social networking, advocacy and public awareness.

When you donate to SBAGNE, you support community events like holiday parties and summer picnics, empowering youth events like BEST&BLING, support groups for adults with spina bifida, constituent financial benefits, and more!

Help Spread the Word!

  Share on Facebook  Tweet  Share

Donate to help James raise money for The 2021 ASICS Falmouth Road Race’s fundraising campaign.

Recent donors

Donation date Donor name Donation amount
Aug 05 Carolyn Polikoff Jojo's story is so inspiring. Good luck in the race and I will be cheering for you from California! $273.35
Aug 05 Scott Shapiro - RT Good luck Jim! $109.85
Aug 05 Woodruff Sawyer - Josh Andrews My older sister has spina bifida and she is 40 years old. This is a beautiful cause you are running for. Best of luck to your family. $55.35
Aug 05 Woodruff Sawyer CARE Good luck, Jim! $1,090.85
Aug 04 Woodruff Sawyer / Melody Key Good Luck! $109.85
Aug 04 Woodruff Sawyer Thank you Jim & Jesse for all you are doing and for sharing your journey with us. Undisclosed amount
Aug 04 Woodruff Sawyer $28.10
Jul 28 Darren Cartwright / Woodruff Sawyer Good luck, Jim! $55.35
Jun 11 Anonymous $55.35
Jun 03 Woodruff Sawyer Go JoJo & Good luck Jim! $55.35