My Story…
Spinal Muscular Atrophy (SMA) is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling, and walking. It is the number one genetic cause of death for infants. While still considered a "rare disease," about 1 in 50 people are genetic carriers for SMA, and those carriers have a 1 in 4 chance for having a child with SMA.
Cure SMA provides vital support for families living with SMA, improving their quality of life. Additionally, they are leading the way to fund research and find a future cure for spinal muscular atrophy. Beginning with the approval of Spinraza in 2016, we've entered a more hopeful chapter. Advancing genetic therapies are slowing the impact of SMA and saving lives.
As a result, your donation truly makes a positive impact on so many families. Since partnering with the Falmouth Road Race, Team Cure SMA has raised over $200K. Let's make sure that number keeps growing. Thank you for your support.
This year I am running in honor of my cousin Cubby Wax, who has SMA I, and will turn 22 in August.
Donate to help Christopher raise money for The 2021 ASICS Falmouth Road Race’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Aug 13 | Andrew C. Berg | $11.75 |
Aug 13 | Evi! | $11.75 |
Aug 08 | Cute SMA | $55.35 |
Aug 03 | A Super Fan | $109.85 |
Aug 03 | Mr. Spinks | $11.75 |
Aug 03 | Anonymous | Undisclosed amount |
Aug 03 | Anonymous | $55.35 |
Aug 03 | FeisT Fitness | $273.35 |
Aug 03 | Mike! | $11.75 |