Duchenne muscular dystrophy (DMD) is the most common fatal pediatric disorder. Duchenne is a progressive neuromuscular disorder that causes a loss of motor, pulmonary, and cardiac function, and ultimately, premature death. It affects approximately 1 in every 3,500 male births. There are approximately 15,000 individuals diagnosed with Duchenne alive today in the United States.
Duchenne has no cure.
Our mission at Jett Foundation is to extend and enrich the lives of individuals affected by Duchenne muscular dystrophy and other neuromuscular disorders.
We fulfill this mission by partnering with individuals and families through empowering educational programming, transformational direct service experiences, and by accelerating development of life-changing treatments.
Go! for Duchenne events, such as the Falmouth Road Race, encourage families and friends to activate their muscles in support of Jett Foundation and the work we do to provide enriching programs for individuals and families impacted by neuromuscular disorders. Just some of our programs and resources for families include:- Camp Promise: a free week of summer camp at five locations across the country for kids and young adults with select neuromuscular disorders like DMD, SMA, Becker, and more.- Jett Giving Fund: a matching gift program with two branches. The Accessible Vehicle Fund helps families impacted by DMD purchase vital accessibility equipment like accessible vans, stairlifts, and more. The second branch, the Emergency Fund, helps families facing acute financial crises.- Family Workshops: a national educational workshop series for families to learn about DMD care, resources, and treatments from local clinicians, experts, and industry partners.- National Community Ambassador program: an opportunity for parents, friends. and family members of individuals impacted by Duchenne to share resources and educate within the community. Ambassadors also facilitate local support groups and events for parents and families.
Thank you for supporting Jett Foundation through our Go! for Duchenne Falmouth Road Race team! We can't do this work without you.
Help us raise money for participating in The 2021 ASICS Falmouth Road Race
|Donation date||Donor name||Donation amount|
|Aug 05||Drew Field||$50.00|
|Aug 04||Nancy and Steve Cox||Undisclosed amount|
|Aug 04||Sarah Pepper||$28.10|
|Aug 03||Natasha Greeve||Undisclosed amount|
|Aug 03||Matt Orsi||$109.85|
|Aug 03||Joan Tosti||$55.35|