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Help us raise money

For participating in Freedom to Move: Run, Walk and Wheel for Dystonia 2021

Our story…

The early signs of Dystonia started for me at the age of 9. I would walk on my left toes, keep my left hand closed tight, speech impediment started. It wasn't until a few years later that I was diagnosed with Dystonia. Back in those days very little information was available about Dystonia. It wasn't until grade 10 that I was started using a wheelchair. For the next 5 years I competed in Ontario games for the disabled (weightlifting, Shotput, 100M Race). In 2015, I had DBS surgery (Deep Brain Stimulation)

Description

Dystonia is a neurological movement disorder that causes muscles in the body to contract or spasm involuntarily. Primary dystonia affects approximately 50,000 Canadians. Watch this short video to learn more. 

The mission of the Dystonia Medical Research Foundation (DMRF) Canada is to advance research for more treatments and ultimately a cure; to promote awareness and education and to support the needs and well being of affected individuals and families. For more information, click here

Team members

Click on one of our team members below to make a donation.

Recent donors

Donation date Donor name Donation amount
May 31 Nicole Jauernig Undisclosed amount
May 31 Anonymous Undisclosed amount
May 31 Ari Matchen Undisclosed amount
May 31 Danielle Nowakowski Undisclosed amount
May 28 An Qi Huang $25.00
May 26 Angels Healthcare Advocates $50.00
May 24 Vivien Way to go, Karinne! $100.00
May 20 Anonymous $50.00
May 19 Chan $45.00
May 14 Mike and Judy Lascelles $30.00