Run for ALD, Cure the Boys!
Knockout ALD is proud to present our 5th Annual Run for ALD, Cure the Boys, a 5K/1 mile run/walk homegrown event, the only one of its kind in the St. Louis area that raises awareness and funds for adrenoleukodystrophy (ALD). ALD is a very progressive disease that affects about 1 in 17,000 boys, many of whom suffer severe neurological symptoms that often result in death if undiagnosed and not treated very early. Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant (the only current treatment) to halt the progression of his cerebral ALD at the University of Minnesota Children's Hospital (a world leader in transplants and ALD research) in 2016.
ALD is considered a rare disease so there are very limited grant funds; in order to initiate and continue life-saving research, the University of Minnesota Leukodystrophy Center depends on charitable donations. All funds raised from Run for ALD will directly benefit the University of Minnesota's ALD Research Fund to support their research efforts for early identification, more effective therapy and treatment options, and hopefully one day a cure for this devastating disease.
Please join us for our 5th annual event, an in-person 5K run/one mile walk at the Tremayne Shelter in Creve Coeur Park OR sign up to participate virtually! (see in-person and virtual options below) Form a team (or join a team) or make a donation (donate tab on the right) to our nonprofit Knockout ALD for this very special cause to help Cure the Boys! You can also send checks (and avoid fees!) to Knockout ALD, 1551 Timberlake Manor Parkway, Chesterfield, MO 63017.
Knockout ALD has donated $75,000 to the U of MN over the last four years..help us to reach over $100,000 total in donations in the 5th year of Run for ALD!