Our story…
Miles for JP is to educate and support others on JPs birth defect Fibular Hemimelia (FH).Fibular hemimelia is a congenital longitudinal limb deficiency characterized by complete or partial absence of the fibula bone. Prevalence is estimated at 1 in 50,000.
The exact cause of fibular hemimelia is unknown. A spontaneous genetic error occurs during limb bud development. This growth abnormality occurs during the development of the lower limb bud at six to eight weeks after conception.
Treatment plans can differ from surgical lengthening to amputation. JP has gone the lengthening route with 9 surgeries under his belt at age 9.
more info on https://kidshealth.org/en/parents/fibular-hemimelia.html
Help us raise money for Nemours Orthopedics/Club Foot and Limb Deformity
Team members
Click on one of our team members below to make a donation.
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Jonathan Giosa
Raised: $429.57
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Aiden Giosa
Raised: $108.20
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Alison Giosa
Raised: $0.00
Team captain
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Keith Giosa
Raised: $0.00
Recent donors
Donation date | Donor name | Donation amount |
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Jun 04 | Robert and Susan Donnelly | $27.48 |
Jun 02 | Aunt Stacey, uncle Bob, Olivia, Rylee, and Eloise | $25.00 |
May 31 | The McCloskeys | Undisclosed amount |
May 18 | Nonni & Poppi | $54.10 |
Apr 29 | Susan Stevens | $80.73 |
Apr 01 | Christine Havrilla | Undisclosed amount |
Mar 31 | The McDonald Family | Undisclosed amount |
Mar 29 | Hoover Family | $27.48 |
Mar 29 | The Maffei Family | $27.48 |
Mar 21 | Brian and Amy Donnelly | $54.10 |