Our story…
Miles for JP is to educate and support others on JPs birth defect Fibular Hemimelia (FH).Fibular hemimelia is a congenital longitudinal limb deficiency characterized by complete or partial absence of the fibula bone. Prevalence is estimated at 1 in 50,000.
The exact cause of fibular hemimelia is unknown. A spontaneous genetic error occurs during limb bud development. This growth abnormality occurs during the development of the lower limb bud at six to eight weeks after conception.
Treatment plans can differ from surgical lengthening to amputation. JP has gone the lengthening route with 9 surgeries under his belt at age 9.
more info on https://kidshealth.org/en/parents/fibular-hemimelia.html
Help us raise money for Nemours Orthopedics/Club Foot and Limb Deformity
Team members
Click on one of our team members below to make a donation.
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Jonathan Giosa
Raised: $429.57
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Aiden Giosa
Raised: $108.20
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Alison Giosa
Raised: $0.00
Team captain
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Keith Giosa
Raised: $0.00
Recent donors
Donation date | Donor name | Donation amount |
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Feb 07 | Anonymous | $107.35 |
Feb 06 | Havrilla-Downes👍 | $54.10 |
Dec 26 | Mom and Dad | Undisclosed amount |
Dec 26 | Mom, Dad and Aiden | Undisclosed amount |