My Story…
Dear friend,
I am participating in the 2400 Feet of Schweitzer ski race again on March 25th 2023 in fundraising support of 24 HOURS FOR HANK, a great cause. The event is in its 15th and FINAL year and entails a 2400 vertical foot ski race at Schweitzer ski area among other activities. Funds are raised for research for a rare disease named Cystinosis, in which the amino acid cystine builds up in the body, causing damage to internal organs over time. My friend's son Hank (super sweet kid from a lovely ski family) has this disease and is one of only 500 people (mostly kids) with Cystinosis in the US, hence there are few research dollars put into this. Research into Cystinosis also helps with other "orphaned diseases" as many of the findings help in treatment and cures of other rare diseases. Check it out further here: http://www.24hoursforhank.org/
The funds raised by this fundraisers and others has been remarkably well spent. check out some of the amazing progress here, including a very promising Stem Cell Gene Therapy in trials with 6 patients all doing well and off oral treatment: https://www.cystinosisresearch.org/research-overview/
I have participated in this event with my friend Brandon for the past 8 years. I am committed to raising much-needed funds to support this worthy cause, and with your help we can both make a difference! My goal is to raise $1,000.00 before the event.
Will you sponsor me by making a tax-deductible donation today? You can donate online quickly and easily here:
https://raceroster.com/events/2022/56843/2400-feet-of-schweitzer/pledge/participant/13991800
Your gift will make a big difference for those who depend on the support of 24 HOURS FOR HANK. Any amount, large or small, is greatly appreciated.
Best, Andy
Donate to help Andy raise money for 2400 Feet of Schweitzer’s fundraising campaign.
Recent donors
Donation date | Donor name | Donation amount |
---|---|---|
Mar 20 | Mike & Shana | $107.35 |
Mar 20 | Mike and Podolske | $107.35 |
Mar 13 | Brian Crawford and Gwen Gutow | $107.35 |
Mar 13 | Janelle Lorenz | $54.10 |
Mar 11 | Patrick Van Der Hyde | $54.10 |
Mar 09 | M&K | Undisclosed amount |
Mar 08 | Doug Hawkins | Undisclosed amount |
Mar 07 | Mark Seto | Undisclosed amount |
Mar 06 | Anonymous | Undisclosed amount |
Mar 06 | George & Betsy Erving | Undisclosed amount |